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1. What information we collect about you and how we use this information
1.1 Account and Profile Information
You don’t have to create an account to use this forum, such as searching and viewing public member profiles, forums, topics and posts. If you do choose to create an account, you must provide us with some personal data so that we can provide our services to you. This includes a display name (for example, "John Doe"), nickname (for example, @john-doe) a username (for example, johnxdoe), a password, and an email address. Your display name and nickname is always public, but you can use either your real name or a pseudonym. After the registration your account display name, nickname and username are the same. We recommend to change display name and nickname to keep the username private and secure. You can change those in your account editing page.
Once you registered and created an account, you also have the option of adding these public information:
- Member Title
- Biography (About Me)
- Social Network Account addresses
- Location (Country)
- And other details to your profile information to be displayed in our community.
Additionally, whilst using the Lafora Selbsthilfe Forum the following information may be collected (not public):
- Internet Protocol (IP) address (not public)
- Geographical location
- Browser type and version (not public)
- Operating system (not public)
- Referral source (not public)
- Length of visit, page views, website navigation and any other related browsing activity
Most activity on Lafora Selbsthilfe Forum is public, including your profile information mentioned above. You also may choose to publish your location in your profile. Information posted about you by other people who use our forum may also be public. For example, other people may mention you using @nickname in posts.
You are responsible for your topics, posts and other information you provide through our services, and you should think carefully about what you make public, especially if it is sensitive information.
You may choose to register connecting your account to accounts on another service (e.g. Facebook login), and that other service may send us information about your account on that service. We use the information we receive to provide you features like cross-posting or cross-service authentication, and to operate our community. We create new account in our community for you based on your third party account information you share.
1.2 Contact Information
We use your contact information, such as your email address, to authenticate your account and keep it - and our services - secure, and to help prevent spam, fraud, and abuse. We also use contact information to personalize our services, enable certain account features for example, for login verification, reset password, to send you information about our community and notify on new replies to your subscribed forums and topics. You can also unsubscribe from any email notifications.
If you email us, we will keep the content of your message, your email address, and your contact information to respond to your request.
1.3 Private Messages and Non-Public Communications
We provide certain features that let you communicate more privately or control who sees your content. For example if forum admin is enabled, you can check the "Set Topic Private" checkbox when you create a topic or click on the "Private" button of your topic first post, or use the Private Messages to have non-public conversations. In these cases we will store and process your communications and information related to them. This includes message content, images, information about whom you have communicated with and when to better understand the use of our community, to protect the safety and review the reported messages. We share the content of your Private Messages with the people you’ve sent them to; we do not use them to serve you ads. When you use features like Private Messages to communicate, remember that recipients have their own copy of your communications on Lafora Selbsthilfe Forum - even if you delete your copy of those messages from your account - which they may duplicate, store, or re-share.
Cookies used by our service providers
1.5 Log Data
We receive information when you view content on or otherwise interact with our community, which we refer to as "Log Data," even if you have not created an account. For example, when you visit our websites, sign into our community, interact with our email notifications, we may receive information about you. This Log Data includes information such as your IP address, browser type, operating system, the referring web page, pages visited, location, your mobile carrier, device information (including device and application IDs), search terms, and cookie information. We use Log Data to operate our services and ensure their secure, reliable, and robust performance. We use information you provide to us and data we receive, including Log Data and data from third parties, to make inferences like what topics you may be interested in and what languages you speak. This helps us better design our services for you and personalize the content we show you.
2. Information We Share and Disclos
2.1 How we share information we collect
You should be aware that any information you provide on our community - including profile information associated with the account you use to post the information - may be read, collected, and used by any member of the public who accesses these websites. Your posts and certain profile information may remain even after you terminate your account. We urge you to consider the sensitivity of any information you input into these Services. To request removal of your information from publicly accessible websites operated by us, please contact us. In some cases, we may not be able to remove your information, in which case we will let you know if we are unable to and why.
2.2 Sharing with third parties
2.2.1 Service Providers: We share information with third parties that help us operate, provide, improve, integrate, customize, support and market our services. We work with third-party service providers to provide website and application development, hosting, maintenance, backup, storage, virtual infrastructure, payment processing, analysis and other services for us, which may require them to access or use information about you. If a service provider needs to access information about you to perform services on our behalf, they do so under close instruction from us, including policies and procedures designed to protect your information.
2.2.3 Social Media Widgets: The Services may include links that direct you to other websites or services whose privacy practices may differ from ours. Your use of and any information you submit to any of those third-party sites is governed by their privacy policies, not this one.
2.3 Law, Harm, and the Public Interest
2.4 Non-Personal Information
We share or disclose non-personal data, such as aggregated information like the community statistic (online users, visitors, current viewers of a topic, etc...), the number of people who clicked on a particular link (number of topic views) or voted on a poll in a topic (even if only one did).
3. How to access and control your information
3.1 Accessing or Rectifying Your Personal Data
You have the right to request a copy of your information, to object to our use of your information. If you have registered an account on our community, we provide you with tools and account settings to access, correct, delete, or modify the personal data you provided to us and associated with your account. You can request for downloading your account information, including your created content (posts). You also can request correction, deletion, or modification of your personal data.
Your request and choices may be limited in certain cases: for example, if fulfilling your request would reveal information about another person, or if you ask to delete information which we or your administrator are permitted by law or have compelling legitimate interests to keep. Where you have asked us to share data with third parties, for example, by installing third-party apps, you will need to contact those third-party service providers directly to have your information deleted or otherwise restricted.
3.2 Deletion Your Personal Data
You can request for your account deletion. This will include personal data, profile data, created content, logs, etc... Cookies should be deleted from your side. Almost all browsers have an option to delete cookies.
Keep in mind that search engines and other third parties may still retain copies of your public information, like your profile information, even after we/you have deleted the information from our community.
3.3 Restrict Processing
3.3.1 Request that we stop using your information: In some cases, you may ask us to stop accessing, storing, using and otherwise processing your information where you believe we don't have the appropriate rights to do so. For example, if you believe a community account was created for you without your permission or you are no longer an active user, you can request that we delete your account (contact us). Where you gave us consent to use your information for a limited purpose, you can contact us to withdraw that consent, but this will not affect any processing that has already taken place at the time. You can also opt-out of our use of your information for marketing purposes by contacting us. When you make such requests, we may need time to investigate and facilitate your request. If there is delay or dispute as to whether we have the right to continue using your information, we will restrict any further use of your information until the request is honored or the dispute is resolved, provided your administrator does not object (where applicable). If you object to information about you being shared with a third-party app, please disable the app or contact your administrator to do so.
3.3.2 Opt out of communications: You may opt out of receiving email notifications related to your subscribed forums and posts or promotional communications from us by using the unsubscribe link within each email, updating your subscription settings in My Profile > Subscription page, or by contacting us as provided below to have your contact information removed from our promotional email list or registration database.
3.4 Data portability
Data portability is the ability to obtain some of your information in a format you can keep in your devices or share with other communities. Depending on the context, this applies to some of your information, but not to all of your information. Should you request it, we will provide you with an electronic file of your basic account information and the information you create on the spaces you under your sole control, like your topics (only with your posts), your replies in other topics, private messages and conversations (only with your messages), etc...
4. How we store and secure information we collect
We use data hosting service providers to host the information we collect, and we use technical measures to secure your data. While we implement safeguards designed to protect your information, no security system is impenetrable and due to the inherent nature of the Internet, we cannot guarantee that data, during transmission through the Internet or while stored on our systems or otherwise in our care, is absolutely safe from intrusion by others.
5. Children and Our Community
Our community is not directed to children, and you may not use our services if you are under the age of 13. You must also be old enough to consent to the processing of your personal data in your country (in some countries we may allow your parent or guardian to do so on your behalf).
7. Your Consent To This Policy
9. Contact Us